Below is a summary of a research article about sleep. A link to the full article is at the bottom. Rest well! Sleep and Quality of Life: What Patients and Care Partners Should Know Sleep is more than just rest—it is a critical part of how your body and mind function every day. New research…
In addition to reading this article – we suggest you take a look at the Personalized Quality of Life Tool we created to track how the disease was impacting life. It is worth tracking, and this tool is not cooker-cutter. It is YOURS! Here is a summary of what the researchers said…. Living with myasthenia…
Below is a summary of the research article. A WHOLE LOT HAS HAPPENED SINCE 2016! This article explores a decade of research for MG. And wow, it has been a busy decade! Why This Article Matters A team of neurologists from the University of Oxford reviewed everything that has changed in the treatment of myasthenia…
FOR IMMEDIATE RELEASE Grand Rapids, MI — February 26, 2026 — Eosinophilic & Rare Disease Cooperative (ERDC) is playing a pivotal role in advancing policies that improve medication research, development, and real-world access for people living with rare diseases. Serving individuals and families affected by more than 40 rare diseases — with a primary focus…
ERDC submits a letter for the record to the US Senate Finance Committee about the importance of correcting the Orphan Cures Act to ensure rare disease research continues. September 16, 2024 Statement for the Record for Senate Finance Committee, September 17, 2024, Full Committee Hearing “Lower Health Care Costs for Americans: Understanding the Benefits of…
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