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Where things stand with TAVNEOS: Amgen makes its case to the FDA
ERDC Community Update A woman in our community once told us that TAVNEOS was the first thing in years that let her feel like herself again — off the high-dose steroids that had reshaped her body and her mood, and back to a version of her disease she could live with. Stories like hers are…
ERDC & You
There is a Save Rare Treatments task force that is working on saving the incentives for pharmaceutical companies who create the research and medications for our rare diseases. These incentives were accidentally overlooked in the recently passedInflation Reduction Act.Without getting too much in the weeds – we’re trying to get Congress to pass the Orphan…
