Quality Of Life

We’re finding it necessary to come up with our own scale of what quality of life means to us. It’s also a way of dealing, concretely, with the fact that our quality of life will never go back to what it was in pre-diagnosis days. There’s a lot of grief that comes up with that. But then, we have an objective way to look at what we do have and how to communicate clearly with our physicians so they understand, on some level, what we’re going through. Read the full article here.