Medication Moment: Tavneos (avacopan)
Watch the interactive livestream.
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Biologics: Myth Busting
Biologics come with a lot of myths — that they’re just stronger pills, that they wipe out your immune system, that starting one traps you forever, even that they’re a kind of vaccine. In this final session of Understanding Biologics, we clear the air. We’ll separate fact from fiction in plain language, explain why a…
Biologics: More Than One Path
Watch the livestream and view the slide deck to learn about biologics from Dana Saffel, PharmD, CPh, BCGP, FASCP Here are the slides: Many thanks to our partners who make livestreams like this possible!
Biologics – What Are They? What is Humanized?
Ever had a doctor say “biologic” and just nodded along, even though you had no idea what they meant? Join us August 20 for Session 1 of our three-part Biologics series: Biologics Overview. Our expert guide is a pharmacist, Dana Saffel, who breaks it all down in plain language — no jargon, no rushing. We’ll cover:🔹 What a biologic…
Letter to Senate Finance Committee: Commonsense Policy Options to Lower Drug Prices for Patients
As a part of our public policy work, we regularly sign onto policy position letters with dozens of other organizations about pending policy issues. Additionally, we create our own letters to state more fully the potential impact of policy on our community. The Senate Finance Committee is proposing a variety of changes with a goal…
Statement by ERDC on Tavneos
We know many in our community are hearing news about Tavneos (avacopan) and questions about its safety, specifically regarding liver toxicity. We want to share what we as a patient organization believe and support: We support patients and their right to informed choice. Every person’s health situation is unique. Decisions about treatment should be made between patients and their…
Medicare for Rare Disease Slides
The slides in this post go hand-in-hand with our Medicare video series, created to help you find the plan that fits your unique needs. For clear, step-by-step guidance through the complexities of Medicare — from Parts A through D and beyond — visit our Medicare for Rare Disease page. You’ll find practical tips, real patient…
