Let’s be honest — Medicare is complicated (at best). And when you live with a rare disease, it can feel downright impossible to figure out what covers your medications, specialists, and unexpected health needs. We’ve been there.

That’s why we created Medicare for Rare Disease — a growing collection of short, easy-to-watch videos that break down the essentials from a rare disease patient perspective.

You’ll find:

• An overview of Medicare and how it really works for rare disease

• What to know about Part B, infusions, and prior authorizations

• Insights on Medicare Advantage (Part C) and drug coverage (Part D)

• A look at Supplemental (Medigap) insurance and why it matters

• And quick “tidbits” you actually need to know

These videos aren’t polished productions — they’re honest, real, and grounded in the rare disease experience.

Whether you’re new to Medicare or a seasoned pro, you’ll find something that helps you make more informed choices for your care and coverage.

Remember the website we use throughout these video clips is www.Medicare.gov

Still have questions? We may not have all the answers, but we want to hear from you!
📧 [email protected]

(P.S. The videos may feel a little “cut and paste,”  but we promise — short and digestible is the goal!)