Events
Welcome! We’re thrilled you’re interested in joining our events. To get started, simply click the ‘Join Event’ buttons below. You’ll be taken to our registration page, where you can easily add the events to your calendar and set up reminders.
We can’t wait to see you there!
Maximizing ER Visit Care & Effectiveness
February 20. 2025
12 noon ET, 9am PST
Last year we sent out over 1000 HEAT Kits to people with myasthenia gravis! During this livestream we will
- Hear from a neurologist about some strategies to help get the doctor treating you to listen and look at it!
- Discuss the complications and realities of emergency medicine.
- Hear from a panel of patients and care partners who have used the kits and learn about their strategies.
- Do a drawing for an Amazon Gift card for attendees that bring their completed kits to the meeting!
Fasenra: Double Action for EGPA
May 1. 2025
12 noon ET
EGPA now has a second treatment! Fasenra was approved in the fall of 2024 for EGPA and brings a new take on addressing the issues. Join this livestream to learn about the dual impact: IL-5 unique action and activating natural killer cells.
Quality of Life: Creating A Personalized Tracking Tool
June 5. 2025
12 noon ET
Just as the disease is unique for each person, so is the tracking of quality of life. Join us to learn about how to create a tool that works for you to track quality of life and disease impact. We will also talk about how to use this tool to more effectively communicate with your provider!
Decision Tree: Best Practice For Care
November 13. 2025
12 noon ET
Figuring out how to navigate the complex health care system can be maddening. Join us to learn about a tool that will help you find the care you need and reduce the stress and strain of making decisions each step of the way!
