Brain Fog with Chronic Disease is Not A Myth

Brain Fog with Chronic Disease is Not A Myth

We hope this article, written by the person who works with Community Engagement and lives with EGPA, will help you feel less alone with brain fog! This article was published
Do You Have The Best Treatment Plan In Place Livestream

Do You Have The Best Treatment Plan In Place Livestream

In this candid and insightful conversation, a patient and a rheumatologist dive into some of the most important—but often overlooked—topics in chronic illness care.Together, they explore how to talk with
Fasenra for EGPA

Fasenra for EGPA

Dr. Jessica Most, Pulmonologist and Medical Director for Eosinophilic Disorders at AstaZeneca talks about the unique mechanism of action for Fasenra (benralizumab) in the treatment of EGPA. She also covers
Personalized Quality Of Life Tool

Personalized Quality Of Life Tool

Explore the Quality of Life Tool designed for people with rare and chronic conditions. The tool can be found below as well as a recording of a livestream that walks
Quality Of Life

Quality Of Life

We’re finding it necessary to come up with our own scale of what quality of life means to us. It’s also a way of dealing, concretely, with the fact that
ERDC 2025 Public Policy Initiatives

ERDC 2025 Public Policy Initiatives

ERDC focuses it’s top policy priorities on systemic issues that impact access to care and treatments for people with rare disease. Specifically we work to: LEARN MORE:
Intimacy In The Context of Chronic Illness

Intimacy In The Context of Chronic Illness

This topic is literally the last thing on anyone’s mind who has a chronic illness and/or rare disease. ERDC’s most recent survey results prove this. Out of 8 items that