Orphan Cures Act

Orphan Cures Act

Just wanted to inform everyone who has a rare disease, or loves someone with a rare disease, that there is an opportunity to make a difference.   When it comes to

ERDC & You

There is a Save Rare Treatments task force that is working on saving the incentives for pharmaceutical companies who create the research and medications for our rare diseases. These incentives

Founding Story

Healthcare. There’s something in that word that brings up a visceral and usually unpleasant sensation in the pit of our stomachs.   And. It’s obviously essential for the survival of