Accessing Medications Should Not Be So Hard

Accessing Medications Should Not Be So Hard

This public policy live stream will provide you with an overview of the Safe Step Act as well as the upcoming changes to medicare part B that will impact access
Frailty in Vasculitis

Frailty in Vasculitis

A recent publication Journal of Rheumatology (June 2025) showed the majority of patients with each form of vasculitis were classified as frail or prefrail. The research used the FRAIL scale
Brain Fog with Chronic Disease is Not A Myth

Brain Fog with Chronic Disease is Not A Myth

We hope this article, written by the person who works with Community Engagement and lives with EGPA, will help you feel less alone with brain fog! This article was published
Do You Have The Best Treatment Plan In Place Livestream

Do You Have The Best Treatment Plan In Place Livestream

In this candid and insightful conversation, a patient and a rheumatologist dive into some of the most important—but often overlooked—topics in chronic illness care.Together, they explore how to talk with
Fasenra for EGPA

Fasenra for EGPA

Dr. Jessica Most, Pulmonologist and Medical Director for Eosinophilic Disorders at AstaZeneca talks about the unique mechanism of action for Fasenra (benralizumab) in the treatment of EGPA. She also covers
Personalized Quality Of Life Tool

Personalized Quality Of Life Tool

Explore the Quality of Life Tool designed for people with rare and chronic conditions. The tool can be found below as well as a recording of a livestream that walks
Quality Of Life

Quality Of Life

We’re finding it necessary to come up with our own scale of what quality of life means to us. It’s also a way of dealing, concretely, with the fact that