Resources & Organizations

Navigating chronic and rare diseases is difficult. Even individuals who are seasoned in the nuances of health care find roadblocks and challenges that are exhausting. It is a journey that requires extensive education from organizations like those you will find in our HEAT Kit™ and on our Resources page. Our goal is to provide practical tools to help navigate the ever changing landscape of healthcare.

Accessing New Medications & Prior Authorization

ERDC is dedicated to assisting people with rare disease, particularly vasculitis, IgG4-RD and Myasthenia Gravis access medications. When medications are new, this can be particularly challenging because it can take an insurance company up to six months to get the medication in their system. Here are some tools to help you out.

The FDA Approved section will always include any medications that have been approved since the last guidelines for the disease were published. The Step by Step Roadmap will take you through some tips and information to better assist you in accessing new medications.

Organizations & Partners

We play well with others. We know that living with a rare disease is hard enough, the last thing we want you to have to spend energy on is searching for resources. Because of that, you can count on us to list all nonprofits we are aware of for each primary disease type we serve.

Want to learn more about our No Competition Philosophy? Visit our About Us page.