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Articles, research, policy updates, and the Rare Candor podcast — everything you need to stay informed about rare disease.
Latest
Articles & Education
Meds & Insurance
Biologics – What Are They? What is Humanized?
August 21, 2026
Meds & Insurance
Letter to Senate Finance Committee: Commonsense Policy Options to Lower Drug Prices for Patients
August 15, 2026
About ERDC
Where things stand with TAVNEOS: Amgen makes its case to the FDA
August 3, 2026
Education
Please Stop Using “Lived Experience”
March 26, 2026
Meds & Insurance
Statement by ERDC on Tavneos
February 6, 2026
Meds & Insurance
Medicare for Rare Disease Slides
November 9, 2025
Advocacy
Policy & Advocacy
Policy Advocacy
Medical Debt in Rare Disease
August 31, 2026
Meds & Insurance
Letter to Senate Finance Committee: Commonsense Policy Options to Lower Drug Prices for Patients
August 15, 2026
Policy Advocacy
Eosinophilic & Rare Disease Cooperative (ERDC) Engages National Effort to Strengthen Research, Protect Incentives, and Improve Access to Rare Disease Treatments
February 26, 2026
Evidence
Research & Insights
Research Insights
Sleep-related Quality of Life in Patients with Myasthenia Gravis
April 3, 2026
Research Insights
Quality of life and social support as key determinants of anxiety and depression in Myasthenia Gravis: evidence from a Chinese cohort
April 3, 2026
Research Insights
Myasthenia Gravis in 2025: five new things and four hopes for the future
April 3, 2026
Listen
Rare Candor Podcast
Real talk about rare disease — treatments, advocacy, and life in between. Hosted by ERDC co-founders Sarah and Pam.
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Unseen Battles: Navigating Kidney Disease with ANCA Vasculitis
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Unveiling Fasenra: The Newest Treatment for EGPA Vasculitis
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